Awareness Should Never End

This month of September has been Duchenne Action Month. 

Knowing no boundaries, the Duchenne community has striven to get people acquainted with the significance of the fatal disease, raise funds for research, and to band together the children and families who live through this nightmare.

Results? I cannot speak for others, but I do know my participation with the support of a wonderfully involved family. Extra essays written on this blog this month. Financial contribution to Parent Project Muscular Dystrophy. Increased private discussions with friends and acquaintances who authentically ask how we and our grandson are doing. Closer attention to the few promising clinical trials currently underway despite COVID-19 interference. Prayer. More prayer. Looking for a glass half full.

This month of September is nearly to an end. Please, each of us who cares about finding new treatments and ultimately a cure for Duchenne should reassess what all we each can do or contribute for this worthwhile cause. 

Think, plan, pray, make happen. What can each of us who care do this month and for the months to follow to help end this terrible disease and help the kids and families dealing with it?

Kindly yours,

Papa in Tennessee