COVID-19 vs. Easter 2020
Since last April when I first heard the term “Duchenne”, I never thought that anything else would ever get between me and my quest to get my gregarious grandson well, or at least safer.
Well, a pandemic of lifetime proportions spawned from an ill-fated human-animal food chain and/or lab experiment halfway across the globe most assuredly has made me wrong, regretfully so.
However, as we know, as disgusting and devastating as is this plague called COVID-19, and as deeply disturbing the human cost has been, the fact that every one out of 3,500 babies (mostly boys) born in the world has an always fatal Duchenne Muscular Dystrophy because of an odd genetic mix-up remains a very painful reality that must be dealt with until we end Duchenne.
Therefore, during this safe distancing, isolated Easter of 2020, as we believers revere God incarnate very much alive, let’s agree that, as bad as this pandemic has become, we survivors will live for another day in the (hopefully near) future when our focus on ending Duchenne must be resurrected, and quickly. Most assuredly, the everlasting spirit of Easter will win!
Amen,
Papa in Tennessee