Kindness Takes On Duchenne
Acts of kindness can change the quality of lives.
Open a door for someone; more than likely they will open a door for another. Smile at people and see them smile back. Let a driver change lanes in front of you and see them do likewise for another.
Kindness is free; it costs nothing. But, wow, does it pay dividends!
Duchenne is the most lethal form of the various strains of Muscular Dystrophy. A genetic train wreck, for one out of every 3,500 boys (and a few girls) born in the world each year. Duchenne causes progressive muscle deterioration. Physical limitations to braces to wheelchairs to breathing machine to heart failure. Duchenne is a death sentence and torture for those who have it.
There is no cure, yet. Treatments are basically symptomatic and simply buy time.
This makes kindness all the more important. Positive attitude, patient support, loving gestures, having fun times, prayers together. The list is essentially limitless.
Kindness is the one human power that the Duchenne monster cannot and will not destroy.
And that means spreading awareness about the effects and promises of treatment of Duchenne.
Please, let’s work together to end Duchenne.
Papa in Tennessee
https://www.parentprojectmd.org
https://www.duchennexchange.org/
In Kindness,
Papa in Tennessee
September, 2019