Renewal

Easter 2022 fit advanced billing. Certainly included many facets of human needs. Paused. Reflected. Took personal inventory. Exchanged kind messages. Prayed a lot. Revisited an individual’s courage and a community of cowardice. Did not dwell on death but rather rejoiced for the rebirth. Shared all with family, including my Duchenne grandson Hayes.

We gift basketed him as if it was Christmas all over again. Probably the wrong message for the holy day but certainly a source of a joyful gathering.

Chasing a cure to Duchenne is also a complex basket of needs and challenges. Another gene therapy trial has hit a wall. Children have died. What is needed? Well, let’s replicate our Eastertime conduct –  

• Pause – get rid of unnecessary noise. Think. Pray.

• Reflect – Re-examine the data, discard the trash, and build upon mostly promising information.

• Have the courage to travel new paths to discovery.

• Do not be afraid to fail as long as there is an alternative Plan B for the pivot.

• Ignore the ongoing muscle deterioration and focus on little successes.

• Share the journey with family and friends who provide support and encouragement.

Let’s renew our resolve to rid humankind of the evil of Duchenne.

Kindly yours,

Papa in Franklin