Wings of Hope

Caring parents and engaged family members have an awesome responsibility. We cultivate the lives of the children of our families with roots and wings.

My grandson has Duchenne Muscular Dystrophy. He has a terrible disease but fortunately very good roots. Our challenge now is to help him with wings, knowing his life’s flight is expected to be limited and tragically shortened.

Yesterday is gone. We should learn from its lessons. Tomorrow is yet to be but depends on today.

Hoping to help end Duchenne, I plan to quit focusing so much on personal disappointment and failed or underachieving treatments that could lead to a cure anytime soon; but, rather, to live today with greater vigor praying and working to optimize Duchenne awareness so that tomorrow may be a better day.  

The harder and smarter I and Duchenne stakeholders work to raise awareness and share helpful information,  the more freely my grandson and similarly afflicted children may be able to fly tomorrow and the next day. At least, that is my fervent hope.

 Kindly,

Papa in Tennessee